ULTIMATELY, IT’S MONEY THAT WILL BRING THIS DISEASE TO ITS KNEES.

MONEY, MONEY, MONEY.

 
 
 

if donating by check, please mail TO:  PO BOX 251,  EAST SETAUKET,  NY  11733

THE 100% PROMISE

PRIVATE DONORS COVER OUR OPERATING COSTS, SO 100% OF MONEY RAISED CAN FUND DUCHENNE PROJECTS DIRECTLY.

Multidisciplinary care

has been shown to extend the life, of a boy with DMD, by an average of 10 years.  Unfortunately, boys in NY, NJ and CT do not have access to this type of care as there are no DMD clinics in the area. Hope for Javier is dedicated to changing this landscape.

DMD Clinics

provide coordinated care with a team of specialists such as a neuro-muscular doctor, cardiologist, pulmonologist, gastroenterologist and physical therapist.  DMD clinics are also where many of the clinical trials are located.  Without access to clinic sites, boys are shut out of potentially life-saving treatments.

Stony Brook Children’s Hospital

is the site of the first DMD center of excellence in the NY tri-state area. It will give a generation of boys a better shot at being here when a cure or treatment is found.

Duchenne is an orphan disease,

one that many pharmaceutical companies do not consider profitable to invest in – in the early stages.  That’s where we come in.  The best way to attract the pharmaceutical industry is to catalyze or spark the investment.

For just $63,

you can buy one hour of Duchenne-focused research time.  For $63 you can get us one hour closer to saving thousands of boys’ lives!

The seeds we plant

will be used to leverage further funds – from big pharma, to big grants by the CDC and NIH. These seeds will grow into a treatment and eventual cure for Duchenne, with our hopes we see that outcome in Javier’s lifetime.