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HOPE FOR JAVIER TODAY
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FOCUS
Our sole focus is to identify and advance projects that are the best shots on goal to prolong life expectancy in Duchenne. Our definition of success is impact on the lives of children with the disease. Everything we do must have a yes in answer to “Will this help add years to the lives of boys with Duchenne?”
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EFFICIENCY
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CREATIVITY
for bold measures. We identify need and create solutions, rather than do what’s usually done.
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LEVERAGE
Our organization is small but mighty. We make our investments count extra by aggressively pursuing leverage in two ways:
1. Leadership opportunities where our funding rallies more money from other organizations and agencies – like the CDC and NIH
2. Partnering with peer organizations, utilizing existing successful models as springboards for new programs.
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MEET TEAM JAVIER
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[columns][three-columns][team_member name=”Jen Portnoy” job=”Javier’s mama, Board Member” description=”Favorite game to play with Javier: Battleship” image=”http://new.hopeforjavier.org/wp-content/uploads/2013/09/jen-for-web.jpg”]
[icon type=”mail” size=”icon-1x” ] jen@hopeforjavier.org
[/three-columns][three-columns][team_member name=”Stasia Portnoy” job=”Javier’s auntie, Board Member” description=”Favorite game to play with Javier: Quirkle” image=”http://new.hopeforjavier.org/wp-content/uploads/2013/09/stasia-for-web.jpg”]
[icon type=”mail” size=”icon-1x” ] stasia@hopeforjavier.org
[/three-columns][three-columns][team_member name=”Natasha Pirogovsky” job=”Javier’s future wife ( ! ), Board member” description=”Favorite game to play with Javier: Hide and Seek” image=”http://new.hopeforjavier.org/wp-content/uploads/2013/07/natasha-for-web.jpg”]
[icon type=”mail” size=”icon-1x” ] natasha@hopeforjavier.org
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[columns][three-columns][team_member name=”Dave Merzin” job=”Javier’s uncle, Board Member” description=”Favorite game to play with Javier: Catch” image=”http://new.hopeforjavier.org/wp-content/uploads/2013/09/dave-for-web.jpg”]
[icon type=”mail” size=”icon-1x” ] info@hopeforjavier.org
[/three-columns][three-columns][team_member name=”Clyde Johnson” job=”Javier’s uncle, Board Member” description=”Favorite game to play with Javier: Amphibian hunting upstate, particularly for newts after a rain” image=”http://www.hopeforjavier.org/wp-content/uploads/2014/10/Clyde-Board.jpg”]
[icon type=”mail” size=”icon-1x” ] clyde@hopeforjavier.org
[/three-columns][three-columns][team_member name=”Alex Romero” job=”Javier’s uncle, Board Member” description=”Favorite game to play with Javier: Angry birds & Wii Lego Star Wars” image=”http://www.hopeforjavier.org/wp-content/uploads/2014/10/Alex-Board.jpg”]
[icon type=”mail” size=”icon-1x” ] alex@hopeforjavier.org
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[columns][three-columns][team_member name=”Rich Romero” job=”Javier’s dad, Board Member” description=”Favorite game to play with Javier: New Super Mario Bros. Wii” image=”http://new.hopeforjavier.org/wp-content/uploads/2013/09/richie-for-web.jpg”]
[icon type=”mail” size=”icon-1x” ] info@hopeforjavier.org
[/three-columns][three-columns][team_member name=”Harry Merzin” job=”Javier’s cousin, Webmaster” description=”Favorite game to play with Javier: Minecraft” image=”http://new.hopeforjavier.org/wp-content/uploads/2013/11/the-kiss.jpg”]
[icon type=”mail” size=”icon-1x” ] info@hopeforjavier.org
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