HOPE FOR JAVIER’S MISSION IS SIMPLE. OUR GOAL IS TO:
•CHANGE THE OUTCOME FOR BOYS WITH DMD, A FATAL CHILDHOOD DISEASE
•IMPROVE HEALTH RELATED QUALITY OF LIFE
HERE’S how we are going to do it:
by funding research
From grassroots fundraising like bake and craft sales to more upscale events, the money we raise helps fund cutting-edge translational research – research that focuses on moving science from the laboratory into human clinical trials – to accelerate the development of life-saving treatments.
BY advocating for dmd boys
From thousands of supporters using social media to get the word out, to our advocacy efforts on Capitol Hill, all of it helps to maximize the collective DMD investment in breakthrough research, improve the standards of care for all DMD patients, and ensure consistent implementation of the latest care standards – ensuring the best possible quality of life for all boys afflicted by this devastating disease.
BY Educating medical Professionals
From supporting the best clinics, to educating medical professionals and caregivers on the latest treatment protocols, we are dedicated to transforming care and improving the healthcare quality of life for all boys with DMD.