Javier’s Heroes

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Looking for some creative ways to help?  

Check out how some ordinary humans have become superheroes in our HERO HALL OF FAME


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farmer 5

Students in the National Jr Honor Society at Gelinas Jr High organized a farmer’s market to benefit Hope for Javier.  They assembled gift baskets for a raffle and organized vendors to donate a percent of their proceeds for the day as well.  The community enjoyed supporting this innovative event, shopping for specialty breads, pastries, oils, soaps, fresh produce and other delicacies from local artisans.


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raking it in

raking it in

Rakes in hand, local heroes Tommy & Andrew Howell set out to clean neighborhood yards with a goal of raising $100. Along the way they enlisted more kids and in the end, brought in $170 in hard earned cash.  Way to rake it in!



cookies for a cause

Walking in their parents’ philanthropic footsteps, Dylan & Kelly Ratner sold their dad David’s famous cookies on their corner one afternoon. Their delicious efforts brought in $259 that was generously matched by Computer Associates and given another bump from the Ratner grandparents, bringing the total to a whopping $618 — that is some seriously sweet dough!



Emily 16

Emily Holtzman sent out invitations to her Sweet 16 with a request – that in lieu of gifts, attendees contribute to one of her selected favorite charities, one of which is Hope for Javier.  We are honored to have been selected by Emily in celebrating her special day and wish her many sweet years to come!

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jared dorf

For Jared Dorf’s bar mitzvah, he let guests know that his bar mitzvah isn’t just a big party — that his special day really does mark the beginning of a life of charity and good deeds.  Jared asked guests to make a donation to Hope for Javier in lieu of gifts, raising $1,177.  We think it’s fitting the amount raised covers just over 18 hours of DMD focused research (in Judaism the number 18 is associated with “chai” or “life”).  Mazel Tov Jared and thank you for choosing Hope for Javier as you embark on a life of mitzvot (good deeds)!


FRUITY FRIDAY (and then some!)


Ceci Meloni, longtime supporter and hero, held a weekly “Fruity Friday” sale in school (yummy, healthy fruit replacing the good old bake sale) with all proceeds benefitting HFJ. But that’s not all! When school ended for the summer, she enlisted her brother Dylan’s help and went door to door selling bracelets & t-shirts, raising awareness and $330!



win a date

Ward Melville High School’s student government came up with a unique fundraiser: Win-A-Date!  Students volunteered to be bachelors and bachelorettes, with attendees purchasing raffle tickets to bid on the date (or dates!) of their choice.  Winners got to enjoy some snacks and conversation in a designated “VIP” section at the event.  Javier’s heartthrobs raised $1000 in 2012!  Building on their success, they held their 2nd Win-A-Date fundraiser in 2013, raising $1500 in support of our mission!

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Our events are run entirely on the steam of amazing volunteers – like longtime supporter David Ratner who whipped up culinary delights at our recent ‘Hearts Full of HOPE” event.  Thanks Dave!



house party

Long-time supporters Flo & Gregor Tarjan opened their home to hundreds as part of the Three Village Historical Society’s annual holiday house tour, but not before transforming it into the most magical and beautifully decorated DMD info center.  In the weeks leading up to the tour, Flo created a weekly ‘knitting night’, open to all local knitters, who worked into the wee hours painstakingly producing hand crafted ornaments.  The hard work and creative vision paid off – their home was dripping in hand-knit and crocheted ornaments, all of which were sold to raise money for the cause.  In addition to the tour, Flo & Gregor opened their home once again, hosting a holiday shopping party where all participating vendors donated 100% of their proceeds to Hope for Javier.  When all was said and done, our hosts pulled in over $8,500 to support initiatives to end DMD.




When tasked with writing and reading aloud a speech on a topic of her choosing, longtime supporter Katie Pav chose Hope for Javier and Duchenne muscular dystrophy as her topic.  Her speech was so well written and skillfully delivered, it was one of the few selected to be presented to the entire school!  Thanks Katie for lending your strong voice to the cause!



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