HOPE FOR JAVIER TODAY

 

FOCUS

target

Our sole focus is to identify and advance projects that are the best shots on goal to prolong life expectancy in Duchenne.  Our definition of success is impact on the lives of children with the disease.  Everything we do must have a yes in answer to “Will this help add years to the lives of boys with Duchenne?”

EFFICIENCY

efficiency
We live by the mantra “lean and mean”.  This no frills approach applies to everything we do – our timelines, our funding, and our strategies to create hope.  Since inception, 100% of every dollar donated has gone directly to our programmatic efforts.

CREATIVITY

lightbulb
We inject creative thinking, nimble problem solving and collaboration for faster and farther reaching results.  The traditional healthcare model can be slow to change, unwieldy and subject to entrenched bureaucratic constraints.  Boys with Duchenne don’t have time for a business-as-usual approach. Drastic circumstances call
for bold measures. We identify need and create solutions, rather than do what’s usually done.

LEVERAGE

leverage

 

Our organization is small but mighty.  We make our investments count extra by aggressively pursuing leverage in two ways:

1. Leadership opportunities where our funding rallies more money from other organizations and agencies – like the CDC and NIH
2. Partnering with peer organizations, utilizing existing successful models as springboards for new programs.

MEET TEAM JAVIER

 

Jen Portnoy

Javier's mama, Board Member

Favorite game to play with Javier: Battleship

 jen@hopeforjavier.org

Stasia Portnoy

Javier's auntie, Board Member

Favorite game to play with Javier: Quirkle

 stasia@hopeforjavier.org

Natasha Pirogovsky

Javier's future wife ( ! ), Board member

Favorite game to play with Javier: Hide and Seek

 natasha@hopeforjavier.org

Dave Merzin

Javier's uncle, Board Member

Favorite game to play with Javier: Catch

 info@hopeforjavier.org

Clyde Johnson

Javier's uncle, Board Member

Favorite game to play with Javier: Amphibian hunting upstate, particularly for newts after a rain

 clyde@hopeforjavier.org

Alex Romero

Javier's uncle, Board Member

Favorite game to play with Javier: Angry birds & Wii Lego Star Wars

 alex@hopeforjavier.org

Rich Romero

Javier's dad, Board Member

Favorite game to play with Javier: New Super Mario Bros. Wii

 info@hopeforjavier.org

Harry Merzin

Javier's cousin, Webmaster

Favorite game to play with Javier: Minecraft

 info@hopeforjavier.org