the mission

The Mission

Hope for Javier’s Mission: To Create Hope Where None (yet) Exists.

Money raised helps to change the outcome in two ways:

Funding translational research, research that
focuses on moving science from the lab into human
clinical trials.

Supporting efforts to promote advocacy in order to
maximize the collective DMD investment in research
and move the field forward.

in 2007, hope for javier raised over $100,000 for charley’s fund.

charley’s fund was established by benjamin and tracy seckler, whose son charley also has duchnenne. charley’s fund directs money into the hands of researchers who have the best shot at developing a treatment or cure for this disease.

in 2009, hope for javier SUPPORTED advocacy efforts in washington, d.c.

Parent Project Muscular Dystrophy’s advocacy program has helped to leverage over $200 million into muscular dystrophy research, with over $45 million in Duchenne specific research.

in 2010, hope for javier JOINED OTHER FAMILY LED ORGANIZATIONS charley’s fund, THE NASH AVERY FOUNDATION AND CURE DUCHENNE IN SUPPORTING A HUMAN CLINICAL TRIAL FOR DMD PATIENTS USING A REPURPOSED FDA-APPROVED DRUG

johns hopkins / kennedy krieger institute LAUNCHED A FIRST-OF-ITS-KIND, PHASE II CLINICAL TRIAL TO INVESTIGATE A TREATMENT FOR HEART DISEASE WITH INDIVIDUALS WITH DUCHENNE MUSCULAR DYSTROPHY (DMD).